An Amateur’s View On ALS – Lou Gehrig’s Disease

The setting to Make my Amateur ALS Video

I could really write a book on my friend Mark. 

I could tell and share all the ups and downs but more than anything, I want to share a video I made about him and how we communicate.

Mark has ALS and while it may have affected many parts of his life, it has not affected his ability to think, to be receptive to touch, to care – he is all there.

I love Mark, dearly and thanks to the magic of the Internet, you tube, the Erica Eye Gaze System and Dyna Vox, Mark can still communicate though he can’t speak or move his arms or legs.

Most of what I want to say is recorded in two you tube videos – only one has been posted so far due to a PC issue but I will get part two up soon.

For now, in my own voice, here is the video I made about ALS.  I made it outside as Mark loves the outdoors – I just didn’t get the lighting right or prepare for mosquitoes.  And the editing is, well, non-existent, I just kept talking and got this thing posted as soon as I could.

I just want everyone to know that ALS or “Lou Gehrig’s Disease” isn’t an end to life – Mark is living it the best he can and I am grateful to google and google filters for providing a free service that I can personalize to make communicating with Mark easier.

And here is the first, very raw part……..